Hailey-Hailey Disease Support (TalkHHD) TalkHHD@groups.io

Group Description

This group is dedicated to the mutual support and encouragement of those suffering with Hailey Hailey Disease (Chronic Benign Familial Pemphigus) and their friends and families.

HHD, Hailey-Hailey Disease or Chronic Benign Familial Pemphigus, is a genetic acantholytic skin condition resulting from a mutation on Chromosome 3 that encodes the protein ATP2C1. This protein is responsible for Calcium Ion transport in a part of the skin cell called the Golgi Apparatus. HHD patients only make half of the protein correctly and this deficiency makes their skin more fragile. Although the long form of the name contains the word "pemphigus", HHD is NOT an autoimmune disease and there is no circulating autoantibody.

This group supports and is supported by the Hailey-Hailey Disease Society, a USA non-profit IRS 501(c)(3) corporation. If you wish to know more about this condition you can visit our website at HailyHailey.com.

This group respects the Guidelines of Groups.io : This is a fully moderated group using English only.

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This support group and our website are funded by generous volunteers.
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IRS 501(c)(3) Tax Exempt Public Charity &
Michigan Registered Charitable Trust #CT 35381
EIN: 20-4174843

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Group Information

  • https://haileyhailey.com
  • 884 Members
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